Resources

Resources2019-11-08T14:47:07-05:00

In-Depth, Information, Links & Resources

Download NIED’s special booklet Understanding Starts Here that includes sections on Eating Disorder Recovery, Approaching Someone with an Eating Disorder, Tips for Parents, Families, Spouses & Significant Others and Resources.

Colour PDF
Black & White PDF

The following organizations have comprehensive Eating Disorders information to share, including up-to-date databases on Treatment Centres, Support Groups and individual Therapists, Nutritionists and Registered Dietitians.

CANADA

National Eating Disorders Information Centre (NEDIC).
National information, resources and links. www.nedic.ca 

MedicAlert ID.
NIED and the Canadian MedicAlert Foundation encourage individuals with an Eating Disorder to wear a customized MedicAlert ID that can “speak for you” should the need arise. The MedicAlert ID is engraved with critical health information, a hotline number and a personalized code number. In the event of an emergency, first responders can access your medical information 24/7 via the hotline – even if you are outside of Canada.
For more information, contact the Canadian MedicAlert Foundation, 1-866-679-3217. Or email: fritzc@medicalert.cawww.medicalert.ca

Public Health Agency of Canada (PHAC).
PHAC has a comprehensive Mental Illness information site where you can learn about mental illness, its risk factors, symptoms and treatment. Visit the site

ONTARIO

ConnexOntario.
Health Services Information. Provides free and confidential health services for people experiencing problems with mental health, gambling, alcohol or drugs. www.connexontario.caMental Health Helpline: 1-866-531-2600

NORTH AMERICA

Theravive.
A comprehensive mental health resource organization linking a network of independent counselors and clinics throughout North America. They are ready to help connect people to therapists, workshops, support groups, seminars or training programs covering every mental health issue, including Eating Disorders. www.theravive.comcontact@theravive.com
Theravive, P.O. Box 18 Lynden, WA 98264, USA
360-350-8627 (US) or 604-626-1329 (Canada)

University of Guelph study on individuals who have previously been diagnosed with an Eating Disorder and have made significant improvements in their eating.

If you are over 18, are fluent in English, and have experienced binge eating disorder, OSFED, EDNOS, anorexia, or bulimia, you may be eligible to participate in this online study.

View Flyer


Review for Repetitive Transcranial Magnetic Stimulation (rTMS)

Health Quality Ontario is currently reviewing Repetitive Transcranial Magnetic Stimulation (rTMS), a therapy for those with treatment-resistant depression.  A key part of this review is to make sure the lived-experience of patients and families are considered.

This review will result in a recommendation to the Ministry of Health about the public funding of Repetitive Transcranial Magnetic Stimulation.  The views, values, and experiences of patient and caregivers are of vital importance to this review.

We are looking to speak to:

– People with experience with treatment-resistant depression, who have sought out therapies such as rTMS or electroconvulsive therapy (ECT).

– Family members/caregivers of people with experience with treatment-resistant depression, who have sought out therapies such as rTMS or electroconvulsive therapy (ECT).

Participants do not need to have received rTMS to participate.

Time Commitment:
15-20 minutes for an interview
Location: Over the phone.  In-person available in GTA if desired.

How to Apply:
Email – david.wells@hqontario.ca to express your interest.
Or call 1-866-623-6868 x710 (toll-free).

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A University of Calgary one-hour phone interview for 18-25 year olds with Eating Disorders.

U of C researchers are recruiting young adults with Eating Disorders to participate in a one-hour phone interview that will explore how individuals with Eating Disorders imagine their future. Gathering this information may allow Eating Disorder clinicians to understand what interventions are required to help people with Eating Disorders achieve life goals that extend outside of their illness.

In order to participate in the study, participants must be between the ages of 18-25, complete a short screening questionnaire (this will be administered via email prior to the interview), and must be seeking treatment for an Eating Disorder from a healthcare provider (family doctor, psychologist, etc.)

If you are interested in participating, please contact Jessica Sauerwein at jessica.sauerwein1@ucalgary.ca

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Study on Family-Based Treatment delivered by Telemedicine versus a Guided Self Help form of Family-Based Treatment.

Families with a child with Anorexia Nervosa are invited to participate in a study comparing Family Based Therapy to an Online Guided Self Help Family Based Therapy using Telemedicine. This study is being conducted at McMaster Children’s Hospital in partnership with Stanford University. Families can live anywhere in Ontario, but they have to have a local family doctor to monitor them medically.

View Flyer


UHN Study: “Brain Stimulation for Eating Disorders.”

The University Health Network’s rTMS (repetitive transcranial magnetic stimulation) clinic is currently conducting clinical trials using different patterns of non-evasive brain stimulation in the treatment of Eating Disorders. Download the PDF brochure below for more details. For more information, call 416-603-5800 extension 5494, or email eileen.lam@uhn.ca, or visit www.rtmsclinic.ca

Download the UHN rTMS Study brochure

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Parental Involvement and Child and Adolescent Eating Disorders: Perspectives from Residents in Psychiatry, Pediatrics, and Family Medicine.
This study investigated medical residents’ perspectives regarding parental involvement as well as their expectations for future practice in the assessment and treatment of ED. Read the study

Related emotional-focused family therapy links:

www.mentalhealthfoundations.ca

www.emotionfocusedfamilytherapy.org

www.emotionfocusedschoolsupport.com

Strategizing for Change: A review of the 2016 EDAC 2016 Conference.Read Andrea LaMarre’s Science of Eating Disorderspost on the 2016 conference held in Winnipeg, Manitoba September 28, 29 & 30.Read the review

Tribute & Inspirational Links
A story of an Eating Disorder, loss and hope. www.somedaymelissa.com

Articles, Videos & Talks Worthy of Your Attention

Read Wency Leung’s article on the release of the Canadian Eating Disorders Strategy: Globe and Mail, November 7, 2019.

Read the article

Read the UK House of Commons follow-up report: Ignoring the Alarms – Too many avoidable deaths from Eating Disorders.

Read the Report

Listen to Anita Federici, PhD, C.Psych. giving a radio interview on CFRB Newstalk 1010 on her petition “My Patient is Dying and We Can’t Access Treatment.”

Listen Here

Sign the Petition Here

Genes linked to Eating Disorders identified. Read the ABC News (Australia) article about a major international study’s findings.

Read the article

World Eating Disorder action day spreads message of support and awareness.
Read The Toronto Sun story by Joanne Richard recognizing World Eating Disorder Action Day – June 2, 2019.

Read the article

Informative Binge Eating Disorder (BED) Video. Watch the video

Eating Disorder sufferer creates brutally honest illustrations of her disease.
Read the Buzz Feed article on Christie Begnell’s visual representation of her Eating Disorder.

Read the article

“I saw food as the enemy”: Article in the Ottawa Citizen on radio host Katherine Dines.
Read how Katherine Dines is now speaking out publicly about the Eating Disorder she his for years.

Read the article

Eating Disorder Research gets a new direction.
Read the National Eating Disorders Association (NEDA) post about the UK National Institute for Health Research-supported initiative to set a 10-point agenda for Eating Disorders research.

Read the article

Strategizing for Change: A review of the 2016 EDAC 2016 Conference.
Read Andrea LaMarre’s Science of Eating Disorderspost on the 2016 conference held in Winnipeg, Manitoba September 28, 29 & 30.

Read the review

UK teenagers with Eating Disorders must be seen by a specialist doctor within a month.
Read about former British Prime Minister David Cameron’s initiative to trigger a revolution in mental health treatment in the UK.

Read article

UK group invests £320,000 (over CAD$660,000!) for a new Eating Disorders service for young people aged eight to 18.
Read how the enlightened Hull and East Riding Clinical Commissioning Groups are investing in a new service launched after a sudden spike in the number of young people admitted to hospital.

Read article

How Monitoring Your Child’s Growth Chart Could Help Prevent an Eating Disorder.
Read Lauren Muhlheim’s informative article on warning signs and early intervention.

Read article

Could the Microbiome cure Eating Disorders?
Read Carrie Arnold’s fascinating article on research into gut microbes and their possible impact on Eating Disorders. http://www.thedailybeast.com/articles/2015/08/19/could-the-microbiome-cure-eating-disorders.html

Why aren’t more doctors treating Eating Disorders?
The Globe and Mail’s Wency Leung probes the causes and effects of our society’s discrimination against Eating Disorders.http://www.theglobeandmail.com/life/health-and-fitness/health/canadas-health-care-system-failing-patients-with-eating-disorders/article25968051/

When the impulse to be thin never grows old.
A powerful article by National Post Health reporter Sharon Kirkey explores Eating Disorders among middle-aged women. Includes moving “lived experience” stories and embedded videos. http://news.nationalpost.com/health/middle-aged-women-also-suffer-from-deadly-eating-disorders

How are colleges and universities helping students with Eating Disorders?
Watch this informative Evidence Exchange Network (EENet) webinar that looked at how to best support a student who may have an Eating Disorder. The presenters are Debbie Berlin-Romalis, BSW, MSW, RSW, Social Worker/Psychotherapist, Executive Director, Sheena’s Place. Lauren Drouillard, MSW, RSW, Social Worker, Program Manager, Sheena’s Place. Coti Maclaughlin-Grant, 2nd Year student, Child and Youth Work Program. Created on January 28, 2015, the webinar is part of EENet’s “Ask the Experts” series. Link to the webinar here

How to Talk to Your Daughter About her Body.
Read Sarah Koppelkam’s thoughtful Huff Post Parents blog. http://www.huffingtonpost.com/sarah-koppelkam/body-image_b_3678534.html?ncid=fcbklnkushpmg00000010

Children’s Hospital of Eastern Ontario Steps Up Efforts to Treat Eating Disorders.
Read the Ottawa Sun article that includes a picture of NIED founder Wendy Preskow with Dr. Mark Norris. http://www.ottawasun.com/2015/02/28/cheo-steps-up-efforts-to-treat-eating-disorders

No treatment for those affected by Eating Disorders in Ireland.
Read this telling article from The Irish Examiner. Seems like we in Canada are not alone.http://www.irishexaminer.com/ireland/no-treatment-scheme-for-eating-disorder-sufferers-317197.html

A statement in support of Eating Disorders Awareness Week in the B.C. Legislature.
Watch B.C. MLA, Jane Thornthwaite (North Vancouver-Seymour) present a statement in the B.C. Legislature during Eating Disorders Awareness Week, February 2015.http://janethornthwaitemla.bc.ca/bcltv_videos/eating-disorders-awareness-week/

Eating Disorders and Parenting in 2015.
Read Joe Kelly’s excellent article on responding to a child with an Eating Disorder. Worth sharing!http://www.edcatalogue.com/eating-disorders-parenting-2015/

Eating Disorders are a scourge in need of a strategy.
Read André Picard’s powerful article, published in The Globe And Mail on December 2, 2014. http://m.theglobeandmail.com/globe-debate/eating-disorders-are-a-scourge-in-need-of-a-strategy/article21858716/?service=mobile

Two-part online report on Canada’s Eating Disorder crisis.
Global News National ran a two-part TV and online report on the Eating Disorders crisis in Canada. View Parliamentary Correspondent Vassey Kapelos’s powerful reports here: Part One http://globalnews.ca/news/1566860/fears-grow-as-wait-lists-for-eating-disorder-treatments-lengthen/Part Two http://globalnews.ca/news/1569023/top-doctor-sounds-alarm-on-lack-of-treatment-for-eating-disorders/

More compelling reading and watching:

Read about the opening of a new 12-bed Eating Disorders Unit at Ontario Shores Centre for Mental Health Sciences in Whitby, Ontario. The first-of-its-kind program in Ontario. http://www.ontarioshores.ca/cms/One.aspx?portalId=169&pageId=22150

Read the Huffington PostCanadablog on Eating Disorders in Canada written by MP (Etobicoke North) Kirsty DuncanPh.D. (now the Hon. Kirsty Duncan, Minister of Science). http://www.huffingtonpost.ca/kirsty-duncan-/eating-disorders-government_b_4858499.html 

Read about a Newfoundland and Labrador Eating Disorder sufferer’s experience in Emergency. http://www.cbc.ca/news/canada/newfoundland-labrador/woman-with-anorexia-told-by-hospital-to-go-get-some-supper-1.2523913

Read about an Eating Disorder sufferer’s Crowdsourcing campaign online.http://www.cbc.ca/news/health/eating-disorder-patient-seeks-60k-online-for-health-care-1.2497052

Desperate Ontario family turns to Crowdsourcing to fund Eating Disorder treatment for their critically ill daughter. http://www.huffingtonpost.ca/2014/01/15/indiegogo-eating-disorder_n_4602672.html?utm_hp_ref=tw

Exposing Canada’s ugly mental-health secret. Article in The Globe and Mail, October 13, 2013. http://www.theglobeandmail.com/life/health-and-fitness/health/exposing-canadas-ugly-mental-health-secret/article14828590/

Dr Blake Woodside on CTV talking about the launch of the new National Eating Disorders Foundation on Friday, October 4, 2013. http://www.ctvnews.ca/video?clipId=1017501

Eating Disorders: What you “NIED” to know. Article in Healthy Living magazine by Dr. Heather Wheeler, member of the NIED Team. http://healthylivingmagazine.ca/eating-disorders-what-you-nied-to-know-now/

XX in Health – Canadian Women Changing Health – Wendy Preskow, founder of NIED, included in the first annual list of Canadian Women Changing Healthcare that spotlights women who are changing the face of healthcare.  http://patientcommando.com/stories/Wendy-Preskow/

Online science-based articles related to binge-eating disorder.http://nataliegtherapy.com/the-binge-eating-files/

Anorexia Awareness Video – dedicated to all those suffering from an Eating Disorder. http://www.youtube.com/watch?v=gd44s13KsC0

Toronto Star article on Deep Brain Stimulation. http://www.thestar.com/life/health_wellness/2013/03/06/toronto_treatment_offers_hope_to_latestage_chronic_anorexics.html

Global Saskatoon interview with Treena Wynes, food addiction councilor, on Eating Disorders in men. http://www.globalsaskatoon.com/video/eating+ourselves+crazy/video.html?v=2330285195&p=1&s=dd – interviews/video

Eating Disorders from the Inside Out: Dr. Laura Hill at TEDxColumbus.http://tedxtalks.ted.com/video/Eating-Disorders-from-the-Insid;search%3ADr%20laura%20hill

BBC News – MSP whose daughter died of eating disorder leads debate.http://www.bbc.co.uk/news/uk-scotland-scotland-politics-17125606

What NOT to Say to a Friend With an Eating Disorder.http://www.huffingtonpost.com/maddie-ruud/post_3175_b_1380996.html

16:9 Boys and Men: Dying to be thin.http://www.globalnews.ca/this+week+on+169+-+april+16/217223/story.html

Israeli government launches new anorexia laws.http://www.israelnationalnews.com/News/News.aspx/153937http://fashion.telegraph.co.uk/article/TMG9154920/New-Israeli-law-bans-underweight-models-in-adverts.html

A Parent’s Guide to Defeating Eating Disorders. Webinar.http://www.youtube.com/watch?v=wxEC8iyxVqk

Australia’s shock Eating Disorder statisticshttp://www.globalpost.com/dispatch/news/health/121211/australia-eating-disorders-anorexia-bulimia-obesity-binge-eating-deloittehttp://www.radioaustralia.net.au/international/2012-12-11/almost-1-million-australians-suffer-eating-disorders/1058748

Manitoba’s Progressive Conservatives say Eating Disorders patients face “unacceptable” wait times. http://www.winnipegfreepress.com/local/wait-times-to-treat-eating-disorders-hit-187844561.html

Workbooks

Centre for Clinical Interventions
This Australian resource provides accessible and useful information on issues related to Eating Disorders and its online workbook includes two specific Eating Disorder modules. www.cci.health.wa.gov.au/resources/consumers.cfm

Books

Journey of Embodiment at the Intersection of Body and Culture.
The Developmental Theory of Embodiment.Dr. Niva Piran, Ph.D., is Professor, Department of Applied Psychology and Human Development at OISE/University of Toronto. Her book provides a new perspective on the interactions between the social environment of girls and women of different social locations and their embodied experience of engagement with the world around them. View Flyer

Shell.
One Woman’s Final Year After a Lifelong Struggle with Anorexia and Bulimia. Michelle Stewart, the author of Michelle’s Voice blog, passed on in 2014. Shell is a compilation of her blogs that put a compelling and intimate face to the disease. Click on the link to watch Kirk Mason and Karen Flello talk to Global News about Michelle Stewart’s story and her poetic memoir about experiencing a terminal illness. Watch the video

The Body Image Survival Guide for Parents.
Kids as young as five are dying to be “perfect” and fit in. Parents are feeling powerless. This book helps them both. By Marci Warhaft-Nadler http://www.fitvsfiction.com

Brave Girl Eating.
A Family’s Struggle with Anorexia. By Harriett Brown.http://www.harrietbrown.com/

Crave.
Why you binge eat and how to stop. By Cynthia M. Bulik Ph.Dhttp://www.cravethebook.com/

Gürze Books
www.bulimia.com

A Parent’s Guide to Defeating Eating Disorders.
By Dr. Karin Jasper and Dr. Ahmed Boachie. http://www.jkp.com/uk/a-parent-s-guide-to-defeating-eating-disorders.html